Who is that Jersey girl?

The easy answer… Me But you probably want to know a bit more…

I was born and raised in Jersey, Not to be confused with New Jersey ;-p

 

I’m not going to go into a long drawn out history. Here are  the basics to get you up to date.

  • I have a disease Called RSD/CRPS. I have always had this disease. I have been able to track the symptoms and flares throughout my history to childhood. For me, each flare happened after an illness or serious injury. Some included adolescent chickenpox and mononucleosis within a year which resulted in my first major flare lasting almost 3 years…. A car accident at 16 which resulted in severe head trauma causing it spread to my head and face. I missed over 6 months of school my sophomore year because of the pain and cognitive symptoms.
  • In 2009 I suffered a severe injury, from domestic violence, to my spine which left me with partial paralysis and severe nerve pain from the middle of my back (L3) where I have several fractured vertebrae to my sciatic nerve and the peripheral nerves in the area suffered a crushing blow. This caused CRPS to spread to all of these areas and it hurts today more than it did in 2009.
  • In May 2015 I acquired another head trauma. I fell into a pool and hit my eye on the lawn chair.I bruised the bone, had a concussion and it spiraled out of control. By March 2016 I was hospitalized. And aneurysm was found (we now know it is caused by the vascular effects of the CRPS of my head.) It has resulted in body-wide tremors, migraines, a burning sensation on my left eyelid into my hairline, convulsions, central nerve amplification with extreme sensitivity to light, touch, vibration, and sound.
  • I have had 4 recommendations for spinal surgery. This will do nothing for my CRPS or nerve pain but it will help stabilize the spine. But the big risk is that the trauma of the surgery itself could cause the spread of the CRPS to another area. We are keeping that one on the backburner for a bit.
  • I need to finish a few more rounds of spinal injections…. Or #PainClubHazing as I call it… before I can do a trial of a spinal cord stimulator.
  • I have been accepted to a Ketamine Clinic for treatment but I am trying to raise the funds to afford this very expensive treatment that is not covered by insurance.
  • I believe every woman with a disability should embrace ” Style Never Surrenders” and “Only thing invisible should be your disease”